oneFAPvoice | Familial Adenomatous Polyposis

welcome to oneFAPvoice

- a positively charged Familial Adenomatous Polyposis community.
  • join today!

connect with and encourage others with FAP, send "hugs, thanks and prayers"

find expert physicians, specialists, genetic and nutritional counselors

get notified of new research and clinical trials, use the matching wizard!

the heart of oneFAPvoice, where you can share your thoughts, ask questions and discuss the latest FAP news and research. post photos, videos and links. find support from a friendly, knowledgeable community!

rareTeams learn more
popular content
How to Talk About Colorectal Cancer with Doctors, Friends, Family, Dates, and Strangers
We all know our poop says important things about us so why can’t we say important things about poop to others? In honor of Colon Cancer Awareness Mo... read more
source: oneFAPvoice
Familial Adenomatous Polyposis Travel Guide
Feeling anxious about upcoming travel plans? With these travel tips, you don’t necessarily have to throw your wanderlust overboard because of Famili... read more
source: oneFAPvoice
FAPtalk Newsletter - Spring Issue 2017
Click here to view our Spring 2017 FAPtalk Newsletter, the seasonal newsletter for those living with Familial Adenomatous Polyposis (FAP). Want... read more
source: oneFAPvoice
What is Familial Adenomatous Polyposis?
Welcome to the world of Familial Adenomatous Polyposis. Much like navigating a foreign land, getting acquainted with FAP can feel utterly overwhelming... read more
source: FAPvoice
new content
rarePoll

What diagnosis have you, your loved one, or your patient(s) received? (Select all that apply)
+ submit answer

coming soon!

play encouragement power and get points and rewards for you and your community!

recruiting trials
view all trials
rareTeams share privately

rareTeams allow you to create a small group with whom you can share and communicate exclusively, rather than with the entire community.

join today and start your own rareTeam!

meet the oneFAPvoice team

CAC curation advisory council
CEC community engagement council
learn more
4 exciting and helpful features - all in one place
your curage feed on FAPvoice.com
encourage media feed - FAP community ignites!
  • have an instant community where everyone is friends - no need to send requests
  • create your rareTeam of closest friends, family members, caregivers and healthcare providers connect with them during crisis
  • FAP-Related info panels - learn more because oneFAPvoice does the research for you!
  • use the sentiment palette to clickEmoteTM by sending and receiving hugs, thanks, prayers and cares - no more awkward "like" buttons
information on FAP clinical trials
clinical trials & features designed for easier access
  • find opportunities to participate in research, and advance the pursuit of treatments and cures
  • easily locate clinical trial centers who need you and are near your home
  • get a clinical trial report that matches you with clinical trials
  • become or find a real-person mentor to support and guide each other in clinical trials
  • learn more about clinical trials in our education center of videos and step-by-step guides
curated news about FAP
trustworthy disease information curated by experts
  • scientific papers written by the researchers and doctors studying treatments and cures
  • bios and profiles of expert doctors, counselors, advocates and other leaders
  • the rest of the internet - we found super cool stuff, including movies, fundraisers, patient assistance programs and more
  • the latest news about Familial Adenomatous Polyposis
  • patient videos, slidedecks and infographics
  • constantly updated 24/7
FAP mobile app
coming soon!
our positive community, right in your pocket

FAPWallet

  • medical history
  • physician contact information
  • personal intro video with your friends, family and medical team

FAPCrisis

  • out of town? need to find an ER?
  • request medical assistance and geolocate centers to get you help fast

FAPChat

  • stay in touch with your FAPTeam of friends, family and medical team during your crisis.
  • send photos, chat and pass the time with positive support

To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences.
More information

The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.

Close