ghanshyamhoney May 24 2023 7:35 am
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LifesaPolyp Apr 13 2023 1:40 pm
Having more than one community makes a huge impact, so I’m spreading the word about One Cancer Place. It’s a place for ALL cancers, for patients and care partners. AND there’s a place specifically for FAP!
We welcome you, if you’re interested reach out to get the process of joining started!+ care 2+ hugs0+ thanks2+ prayers0
Aussie45 Apr 11 2023 10:18 pm
I am wondering why there is nothing said about this terrible source of tumors and cancer on the news and ads. Most people don't have a clue about it and I wonder also how many of the cancer deaths are really from FAP. I Avery fortunate to have found an excellent ophthalmologist who has managed to kept my eyesight decent considering issues attributed to FAP. If those of us that had the disease knew before conceiving babies, we could also stop …+ care 2+ hugs1+ thanks1+ prayers0
TNT Apr 11 2023 11:55 am
I still check for updates. I am a caregiver+ care 1+ hugs0+ thanks1+ prayers0
andreww59 Apr 8 2023 5:19 am
Is this page still active? I have lots of questions about fap.+ care 1+ hugs1+ thanks0+ prayers0
Recently I underwent successful pancreas-sparing duodenectomy resection surgery at Stanford University Hospital.+ care 5+ hugs3+ thanks0+ prayers0
Shortly after my AFAP diagnosis and successful total-proctocolectomy w/permanent ileostomy surgery I created an acronym for ADAPT: Attitude Determines the Ability for a Positive Transformation. My mindset is I tend not to think of things I'm unable to control, such as medical conditions. What I can control is my positive attitude and after five decades on God's green earth my positive attitude has brought me this far why change now.
Always For…+ care 3+ hugs2+ thanks1+ prayers0
CHRIS Jul 26 2022 11:19 pm
I had my colectomy with J pouch, temporary ileostomy for 6-8 weeks and then the ileostomy reversed in 2014. I’ve battled pouchitis for nearly 8 years. In the last year, I’m having severe anemia despite antibiotic treatment and iron infusions. Has anyone had their J pouch removed and went to a permanent ileostomy? Seeing my surgeon tomorrow for a consult to discuss options.+ care 1+ hugs0thanked1+ prayers0
Jaretta Jul 15 2022 4:53 pm
Hello I am new here. I am 40. I had my colon removed at 7 yrs old. I have a jpouch. I have always had polyps in my stomach, small intestine & jpouch. As an adult FAP continues to give me even more issues.
I had my thyroid removed in 2018 due to cancer related to FAP. Now I have a huge desmoid tumor in my breast which is related to FAP.
What’s so ironic is that I am the first person in my family to have this. I just seen a genetic dr here a…+ care 6+ hugs6+ thanks0+ prayers0
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