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Honey has been used for centuries as a natural sweetener, but its benefits extend far beyond its delightful taste. Packed with essential nutrients, enzymes, and antioxidants, honey offers a wide range of health benefits that have been recognized and valued across cultures. From boosting immunity to promoting wound healing, honey has earned its reputation as a versatile superfood. You can buy natural honey online india. In this article, we will ex…Read more
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Having more than one community makes a huge impact, so I’m spreading the word about One Cancer Place. It’s a place for ALL cancers, for patients and care partners. AND there’s a place specifically for FAP!
We welcome you, if you’re interested reach out to get the process of joining started!
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I am wondering why there is nothing said about this terrible source of tumors and cancer on the news and ads. Most people don't have a clue about it and I wonder also how many of the cancer deaths are really from FAP. I Avery fortunate to have found an excellent ophthalmologist who has managed to kept my eyesight decent considering issues attributed to FAP. If those of us that had the disease knew before conceiving babies, we could also stop …Read more
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LifesaPolyp
That’s great to hear! Lucky iron fish can also really help with iron for when making stews or soups. Fap accounts for about 1% of colorectal cancer cases but with so many cancers associated with fap that it’d be hard to know how many deaths are caused by Fap, although would be great to know. I wish there were more coverage too. But we are making progress, bit by bit! Between activists like myself and others, we’re getting more coverage acr…Read more
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I still check for updates. I am a caregiver
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Is this page still active? I have lots of questions about fap.
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LifesaPolyp
What questions do you have?
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Recently I underwent successful pancreas-sparing duodenectomy resection surgery at Stanford University Hospital.
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Shortly after my AFAP diagnosis and successful total-proctocolectomy w/permanent ileostomy surgery I created an acronym for ADAPT: Attitude Determines the Ability for a Positive Transformation. My mindset is I tend not to think of things I'm unable to control, such as medical conditions. What I can control is my positive attitude and after five decades on God's green earth my positive attitude has brought me this far why change now.
Always For…Read more+ care 3+ hugs2+ thanks1+ prayers0+ care 3+ hugs2+ thanks1+ prayers0-
Tasha Manning
I love this! Thank you for sharing.
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Aussie45
I LOVE that idea and will share it with our hospital staff --
I trust you are doing well and loving every day!!
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CHRIS
I never knew how to put this concept that I used to trudge through to the other side into words. Thank you! When people ask, I will share your words of wisdom. This community never ceases to amaze me nor stop confirming my walk with FAP.
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I had my colectomy with J pouch, temporary ileostomy for 6-8 weeks and then the ileostomy reversed in 2014. I’ve battled pouchitis for nearly 8 years. In the last year, I’m having severe anemia despite antibiotic treatment and iron infusions. Has anyone had their J pouch removed and went to a permanent ileostomy? Seeing my surgeon tomorrow for a consult to discuss options.
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Aussie45
Personally I cannot imagine wanting traverse the original surgery. If I were you I'd have it brought back to a stoma and simplify your life. FAP causes enough issues to deal with. I am missing so much else and I give thanks for each day. I have to get hydration infusions weekly now and a use a drink called ROAR over ice that hydrates -- and keeps my kidneys alive. This past year has not been great due to thyroid and pancreas issues but those…Read more
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Hello I am new here. I am 40. I had my colon removed at 7 yrs old. I have a jpouch. I have always had polyps in my stomach, small intestine & jpouch. As an adult FAP continues to give me even more issues.
I had my thyroid removed in 2018 due to cancer related to FAP. Now I have a huge desmoid tumor in my breast which is related to FAP.
What’s so ironic is that I am the first person in my family to have this. I just seen a genetic dr here a…Read more+ care 6+ hugs6+ thanks0+ prayers0+ care 6+ hugs6+ thanks0+ prayers0-
teheller
Glad you're receiving better care! If you don't mind sharing, do you know which codon your mutation occurred? Our son is also de novo and we read that 1309 was the most common for de novo (which is where our son's mutation occurred). Thanks.
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Heather Guy
I am 43 , my dad and his brothers and sisters and mother all have it, I am 1/4 children that has it. Only one of my dads sister is still alive. I had a standard colectomy at 18 prophylactically, I had thyroid cancer at 20 that was in lymph nodes, I have polyps everywhere in my stomach and finally got the duodenal adenoma under control with Celebrex 400mg 2xday (make sure they check your duodenum with ercp) I have enough to get by without a bag …Read more
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Pav2uk
I was on same boat the only and first person in my family 22 years ago . Had total ileostomy and now whipple surgery due to Pancreatic cancer in 2019 I’m all clear x
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Heather Guy
Yeah I’m tried to avoid a whipple my ercp is normal now. I eat Celebrex like candy basically and eat healthy and follow up blah……. Good to hear your doing well.
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I was looking through the RareCurate Places. Is there a way to add Mayo Clinic Jacksonville? I'd hate for people in the Southeast US to think they had to travel all the way to Minnesota.
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LifesaPolyp
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LifesaPolyp
I tried to send the question through the contact us but it won't accept any of the anti robot codes I enter.
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