Site-Wide Activity |
  • related content
    Profile Photo
    Naydeen May 20 2020 2:59 am

    I need support for my 11 old year old grandson diagnosed with FAP. I'm a single, retired woman, age 64, and his legal guardian. I have little support. I need help dealing with this diagnose and his care. Thank you kindly, Nadine Dias
    860-886-0313:home and 860-884-7564 (cell).

    + care    0
    + hugs
    0
    + thanks
    0
    + prayers
    0
  • related content
    Profile Photo
    Lily May 16 2020 2:56 pm

    My total colectomy, jpouch, and ileostomy bag surgery is next Thursday is there’s anything I should do right now to help prepare for it? Does anyone have any useful tips for this?

    + care    1
    + hugs
    0
    + thanks
    0
    + prayers
    1
  • related content
    Profile Photo
    polypsaplenty Apr 4 2020 6:54 pm

    Hello, randomly specific question. I had my colectomy about 9 years ago, and am doing well. I have gotten into surfing for the last two years, and I am surfing pretty much every day for an hour or two. I don't get board rash on my stomach, but I do get it over my scar (I have a "7 shaped" scar that goes up to my belly button and goes sideways towards where my ostomy used to be). I think my scar rash is happening because the scar is more de…Read more

    + care    0
    + hugs
    0
    + thanks
    0
    + prayers
    0
  • related content
    Profile Photo
    Kendall Moore Feb 4 2020 3:21 pm

    Thank you to the FAP community for your ongoing support. We are thrilled to introduce a new tool to help patients and caregivers find and connect to clinical trials. The Clincal Trial Finder can be found here for all FAP members: https://www.fapvoice.com/clinical-trial-finder/

    + care    3
    + hugs
    0
    + thanks
    2
    + prayers
    0
  • related content
    Profile Photo
    msstolencolon Feb 1 2020 2:56 am

    Hi there! I had a total colectomy 3 years ago. I’m still have issuing controlling my bowel movements... I am a nurse and it’s so tough to try to keep close to a bathroom while trying to care for others. What meds have worked for y’all to slow things down? I’m currently on Lomotil and Hycosamine but am starting to need more and more to have a normal day. Thank you!

    + care    3
    + hugs
    1
    + thanks
    0
    + prayers
    0
  • related content
    Profile Photo
    sourav ganguly Jan 31 2020 2:43 am

    https://www.fapvoice.com/rarepoll-single/?poll=10

    + care    0
    + hugs
    0
    + thanks
    0
    + prayers
    0
  • related content
    Profile Photo
    Nick W. Jan 15 2020 6:10 am

    It’s been probably about a year since my last comment on here. Hello all, when I first found this site I was 15 years old, turning 16 in a month and having my complete colectomy in about 2 weeks. I was terrified. And I commented on this site acting strong and curious in what was to come. Honestly I was terrified, and after all my surgeries were done I was depressed. About a year ago I commented on here again being almost 18 I felt enough time h…Read more

    + care    14
    + hugs
    4
    + thanks
    3
    + prayers
    2
  • related content
    Profile Photo
    cjpjrr3 Dec 22 2019 3:28 am

    I had j pouch surgery along with complete hysterectomy including both ovaries 14 months ago. I have a polyps that has engulfed the end of the ampulla in the duodenum, removing it will also involve removing a little of the ampulla and putting in temporary stints. I can't do the procedure now because I recently was put on blood thinners due to a 90 % blockage in an artery .my question is diet. To keep my bowels under control I do best eating eve…Read more

    + care    4
    + hugs
    1
    + thanks
    0
    + prayers
    1
  • related content
    Profile Photo
    Lily Dec 20 2019 9:58 pm

    I’m having my colon removed, a little of my rectum, the jpouch, and a temporary ostomy bag. I’m worried about people bullying me I mean I am in middle school

    + care    8
    + hugs
    5
    + thanks
    0
    + prayers
    2
  • related content
    Profile Photo
    Lily Dec 17 2019 12:41 am

    So I have a question. Because of FAP I have frequent stomach aches from anything really and I’m going to get a total colectomy in the next month or so will that make my stomach aches better worse or will it stay the same???

    + care    0
    + hugs
    0
    + thanks
    0
    + prayers
    0
  • load more

To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences.
More information

The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.

Close