Kirsten Douma | oneFAPvoice

Kirsten Douma, PhD

Academic Medical Center
University of Amsterdam
Amsterdam, The Netherlands

Kirsten Douma graduated in Clinical (Neuro)psychology from University of Amsterdam (1997- 2003). She then performed her master’s research at the Netherlands Cancer Institute on cognitive functioning after high-dose chemotherapy. She carried out her clinical internship at two nursery homes in Hoorn and wrote a master thesis about the influence of normal aging on the development of depression.

Kirsten Douma subsequently worked as a research assistant, researcher and PhD-student at the Netherlands Cancer Institute. In December 2009, she finished her PhD project entitled ‘The psychosocial and behavioural impact of familial adenomatous polyposis’. She then joined the Academic Medical Centre (AMC) in Amsterdam as a post-doc.

Currently, she works as a post-doctoral researcher and Dutch Cancer Society Fellow at the AMC investigating communication about oncogenetic information. She is also a member of the advisory board of the Dutch Lynch-Polyposis Patient Association and deputy chair of the IPOS Early Career Professional Committee.

Selected Publications We Have Curated:

Long-Term Compliance with Endoscopic Surveillance for Familial Adenomatous Polyposis

Quality of Life and Consequences for Daily Life of Familial Adenomatous Polyposis (FAP) Family Members

Attitudes Toward Genetic Testing in Childhood and Reproductive Decision-Making for Familial Adenomatous Polyposis

Gatekeeper Role of Gastroenterologists and Surgeons in Recognising and Discussing Familial Colorectal Cancer

Psychological Distress and Quality of Life of Partners of Individuals with Familial Adenomatous Polyposis

Psychological Distress and Use of Psychosocial Support in Familial Adenomatous Polyposis

Psychosocial Issues in Genetic Testing for Familial Adenomatous Polyposis: a Review of the Literature