rip marty o’brien

My name is Marty O’Brien, and I was born with the genetic disorder Familial Adenomatous Polyposis, or FAP. I have been battling this disease since my diagnosis at Massachusetts General Hospital in 1995. I have an abdominal tumor, called a Desmoid tumor, which has been around unfortunately since 1998. My story sometimes feels too long to tell, but the long and short of it is that I suffer from an orphan disease, meaning it is very rare, and there is not much money abounding for research and treatment. My wife and I been told many times that I have been close to death. Too many for me, thanks!