familial adenomatous polyposis support group | oneFAPvoice

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familial adenomatous polyposis support group


F.A.P is a rare inherited bowel disease that causes the growth of multiple polyps (small lumps/growths) to form on the lining of the bowel. These growths are non cancerous to start with but have what is called a predisposition to cancer,so over time the polyps can turn cancerous. Regular checkups using an internal camera called a scope and surgery are vital in the prevention of cancer and a relatively “normal” life can be lead. I was diagnosed at the age of 16 and I have created this group for sufferers of this disease in the hope that together, we can build an online community that is there to support each other day to day. Emotional support and understanding I believe is crucial to coping with this disease and there is no better support than people who are in the same situation. I feel it is very important to educate people on this disease,not only for the suffers who have it now,but for families in the future because as I have rather painfully realized it can happen to anybody!

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