welcome to oneFAPvoice- a positively charged Familial Adenomatous Polyposis community.
- join today!
I’m Jenny and I was diagnosed with Familial Adenomatous Polyposis at age 8. FAP is a hereditary rare disease that causes the development of hundreds to thousands of polyps throughout the gastrointestinal tract. An individual with FAP is guaranteed to develop cancer at some point in their lifetime and may develop cancer anywhere in the GI tract as well as other parts of the body with FAP.
This is my journey with FAP: recounting memories and experiences, coping with life changes, tackling new challenges, and doing my best to continue to survive. When I was a child, I didn’t know anyone else with FAP outside of my family. I hope you’ll join me and together we can fight this disease.
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