welcome to oneFAPvoice- a positively charged Familial Adenomatous Polyposis community.
- join today!
Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.
The campaign targets primarily the general public and also seeks to raise awareness amongst policy makers, public authorities, industry representatives, researchers, health professionals and anyone who has a genuine interest in rare diseases.
The event is scheduled for February 29, 2020. Stay tuned for more information about the event.
expertly curated content related to this topic
Rare Disease Day at NIH 2020Rare Disease Day takes place worldwide, ...
Annual DTRF Patient Meeting**BIG NEWS: The DTRF September weekend i...
Bonnie June 2008https://jtvcancersupport.com/embed/55453...
Zebra Subway Car Runs Through Boston to Draw Attention to Rare DiseasesBostonians may be seeing stripes this mo...
Undy Run/WalkThe National Undy RunWalk is not just an...
Rare Disease Week on Capitol HillThe Rare Disease Week on Capitol Hill Le...