welcome to oneFAPvoice- a positively charged Familial Adenomatous Polyposis community.
- join today!
Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. The campaign targets primarily the general public and also seeks to raise awareness amongst policy makers, public authorities, industry representatives, researchers, health professionals and anyone who has a genuine interest in rare diseases.
Rare Disease Day 2019 is happening on February 28th! There are many ways to get involved like sharing your story and attending an event.
How will you #ShareYourRare
expertly curated content related to this topic
European Hereditary Tumour Group 3rd Meeting 2018Dates: 23-25 September 2018 (Sunday to T...
Bath woman with terminal cancer beats £20,000 fundraising goal in two daysAmy Mattingly’s diagnosis came after h...
East Belfast father and son using their love of cars to raise thousands for sick youngsterIain Craig and son Jacob are organising ...
Rare Disease Day at NIH 2018‘Rare Disease Day’ takes place world...
Youth RallyApplications are now closed for Youth Ra...
Hereditary Colon Cancer Family DaysThe landscape of hereditary cancer is sc...