welcome to oneFAPvoice
- a positively charged Familial Adenomatous Polyposis community.- join today!
- login
Rare Disease Week on Capitol Hill
The Rare Disease Week on Capitol Hill Legislative Conference and Lobby Day is an event established for patients and caregivers, patient advocates, and patient advocacy organizations. While representatives from industry are invited to attend the Legislative Conference, the lobby day is for patients and caregivers, patients advocates, and patient advocacy organizations only.
We are excited to welcome rare disease advocates from across the country to Rare Disease Week on Capitol Hill 2020 in Washington, DC from February 25-28, 2020. Stay tuned for more information about the event.
expertly curated content related to this topic
- CGA Annual MeetingThe 23rd CGA Annual Meeting will assembl...
- Annual DTRF Patient MeetingThe annual DTRF Patient Meeting, founded...
- Cancer Support CommunityAnyone impacted by a diagnosis of cancer...
- Bath woman with terminal cancer beats £20,000 fundraising goal in two daysAmy Mattingly’s diagnosis came after h...
- European Hereditary Tumour Group MeetingOn behalf of the European Hereditary Tum...
- Bonnie June 2008https://jtvcancersupport.com/embed/55453...
English
Portuguese