welcome to oneFAPvoice
- a positively charged Familial Adenomatous Polyposis community.- join today!
- login
Rare Disease Week on Capitol Hill
The Rare Disease Week on Capitol Hill Legislative Conference and Lobby Day is an event established for patients and caregivers, patient advocates, and patient advocacy organizations. While representatives from industry are invited to attend the Legislative Conference, the lobby day is for patients and caregivers, patients advocates, and patient advocacy organizations only.
We are excited to welcome rare disease advocates from across the country to Rare Disease Week on Capitol Hill 2020 in Washington, DC from February 25-28, 2020. Stay tuned for more information about the event.
expertly curated content related to this topic
-
Rare Disease Day at NIH 2020Rare Disease Day takes place worldwide, ...
-
Phoebe’s Pledge – Inspirational teenager asking North East businesses to support young people with cancerPhoebe Hedley, from Cleadon, South Tynes...
-
European Hereditary Tumour Group MeetingFollowing on from our busiest meeting ev...
-
Rare Disease Day – HomeRare Disease Day takes place on the last...
-
Undy Run/WalkThe National Undy RunWalk is not just an...
-
Bath woman with terminal cancer beats £20,000 fundraising goal in two daysAmy Mattingly’s diagnosis came after h...
-
CGA Annual MeetingBe sure to mark your calendars and start...
English
Portuguese
Spanish