welcome to oneFAPvoice- a positively charged Familial Adenomatous Polyposis community.
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The EveryLife Foundation and Global Genes are excited to partner for RARE on the Road, a Rare Disease Leadership Tour to bring critical education and insights to rare disease patients, caregivers and other advocates. We are uniting to build and activate the rare disease community at the local level. Whether you’re new to the rare disease community or a “seasoned veteran” this workshop will benefit you!
In order to enable more advocates to attend, the EveryLife Foundation and Global Genes will offer a limited number of $150 travel stipends for each event. Rare disease patients and caregivers who otherwise would not be able to attend will need to apply for the stipend. Applicants will be notified of their application status one month prior to the date of their selected event.
March 30, 2019
8:30 AM-4:30 PM
415 Main Street
Cambridge, Massachusetts, USA
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