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clinical trials

Upcoming events – pivotal data loom for Novavax and Mallinckrodt

  Welcome to your weekly digest of approaching regulatory and clinical readouts. Novavax is up 4% today thanks to topline results from a phase II trial showing that its Nanoflu influenza vaccine caused “vigorous immune responses” to four strains of flu, and that these responses were enhanced when the group’s Matrix-M adjuvant was added to the vaccine. But an even more meaningful event is approaching. Novavax’s lead asset, a vaccine against respiratory syncytial virus, is in phase III, and after its disastrous failure two years ago in a study that was intended to be pivotal this is its last chance. Resvax, also known as RSV F Vaccine since it targets the fusion protein of the virus, crashed out of the Resolve trial, testing it in prevention of moderate to severe RSV-associated lower respiratory tract disease, in mid-2016.  
Jan 4, 2019
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research

The Impact of Rare Disease on Family Caregivers

It always hurts when a loved one gets sick. However, the emotional toll and stress increases when you are the primary caregiver for a close family member or friend living with a rare condition for which effective treatments and sufficient support services may be lacking. The National Alliance for Caregiving (NAC), in partnership with Global Genes, a rare-disease advocacy organization, hope to glean greater insights into just what challenges unpaid caregivers of loved ones with rare conditions are facing. The groups have joined forces to survey more than 1,400 American adults currently providing unpaid care to a child or adult with one of more than 400 rare conditions.  
Feb 28, 2018

Annual DTRF Patient Meeting

Sep 21, 2019

Rare Disease Day – Home

Feb 28, 2019

Rare Disease Week on Capitol Hill

Feb 24, 2019

Undy Run/Walk

Nov 10, 2018

CGA Annual Meeting

Oct 14, 2018
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