welcome to oneFAPvoice
- a positively charged Familial Adenomatous Polyposis community.- join today!
- login
community leaders
Jenny Jones
Community Leader Blogger
Life’s a Polyp
Oklahoma City, Oklahoma, United States
Jenny was diagnosed with Familial Adenomatous Polyposis when she was 8 years old. An individual with FAP is destined to develop cancer at some point in their lifetime, which is why preventative treatment is crucial. She has a family history of FAP. She and her mother are the last survivors in their family with FAP. She had a temporary ileostomy at age 9 and 4 subsequent surgeries, lived with an ileostomy for 6 years and then had a pull-through surgery.
Jenny’s health has now stabilized and she was able to graduate with a Masters degree and maintained full time employment, and is enjoying life as well as discovering new challenges for herself everyday. She runs a blog ”Life’s A Polyp”.
expertly curated content related to this topic
-
Medizinische Universitätsklinik KnappschaftskrankenhausThe Knappschaftskrankenhaus is affiliate...
-
Three Sisters, One Colonhttps://www.youtube.com/watch?v=JQpt3b-j...
-
soledad drago-fergusonPublic Health Consultant...
-
How to Take Charge of Your Medical RecordsPatients have a lot to gain by getting a...
-
Isabel Mendes Gaspar, MDSpecialities: Hereditary cardiovascular...
-
dan donovanFounder & CEO at Clear Pharma...
-
How do patients with rare Diseases Experience the Medical Encounter? Exploring Role Behavior and its Impact on Patie...OBJECTIVES: Empirical research shows th...