The Johns Hopkins Guide for Patients and Families: Familial Adenomatous Polyposis | oneFAPvoice

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The Johns Hopkins Guide for Patients and Families: Familial Adenomatous Polyposis

key information

source: Johns Hopkins Hereditary Colorectal Cancer Program

year: 2000

authors: Judith Bacon, Susan Viles Booker, Jill D. Brensinger, Paul Celano, Donna Cox, Francis M. Giardiello, Stanley R. Hamilton, Linda Hylind, Karen A. Johnson, Anne J. Krush, L. Stefan Levin, Gloria M. Petersen, Kathy Potter, Katherine Romans, Elias I. Traboulsi, John Yardley

summary/abstract:

This article focuses mainly on introducing F.A.P. with a focus on colorectal cancer. There is a nifty glossary at the end of this guide which clarifies some terms that commonly pop up in the F.A.P. world. Also, please keep in mind this guide is from 2000 so some info may be a little dated.  –  FAPvoice

From the author:

Table of Contents

-Introduction

-What are Polyps?

-What is Familial Adenomatous Polyposis (FAP)?

-What is Attenuated FAP (AFAP)?

-What is the Gastrointestinal Tract?

-How is FAP Inherited?

-DNA Test for FAP

-Why is Early Diagnosis Important?

-Exam Guidelines for People At Risk

-What are the Symptoms of FAP?

-Other Tumors Associated with FAP

-How is FAP Diagnosed?

-What is the Treatment?

-Sexual Function and Childbirth After Surgery

-Guidelines for Follow Up Care for People with FAP

-Support Groups for Individuals and Families

-Resources

-Publications

-Glossary

-Appendix

organisation: The Johns Hopkins University

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