welcome to oneFAPvoice
- a positively charged Familial Adenomatous Polyposis community.- join today!
- login
Familial Adenomatous Polyposis: Mental Health, Psychosocial Functioning and Reactions to Genetic Risk in Adolescents
source: Clinical genetics
year: 2010
authors: Gjone H, Diseth T H, Fausa O, Nøvik T S, Heiberg A
summary/abstract:Familial adenomatous polyposis (FAP) in a parent requires diagnostic follow-up and treatment from adolescence in possible gene carriers in order to prevent cancer development. A nationwide sample (n = 22) of adolescent FAP offspring including 85% of eligible individuals aged 11-20 years and their parents were interviewed with regard to adolescent mental health, psychosocial functioning, knowledge about FAP and genetic risk, and experiences with testing and surgery. Thirty-six percent of the FAP offspring fulfilled criteria for a psychiatric diagnosis. For adolescents older than 15 years, this was increased relative to a comparison group with Hirschprung’s disease and a general population sample. Neither genetic testing nor FAP diagnosis in adolescent FAP-offspring differentiated significantly between those who fulfilled the criteria and those who did not for psychiatric diagnosis, while a global score of chronic family difficulties did. This may imply that experiencing parental illness more than inheriting FAP is a perceived stressor for adolescent FAP offspring.
organization: Oslo University HospitalDOI: 10.1111/j.1399-0004.2010.01534.x
read more full text source
expertly curated content related to this topic
-
Outcome After Ileal Pouch-Anal Anastomosis for Familial Adenomatous Polyposis Compared to Mucosal Ulcerative Colitis...BACKGROUND AND OBJECTIVES : To compare t...
-
Bowel Cancer – How Genetic Information can Help Reduce the RiskPaul’s story about the dominantly inhe...
-
Shrinking the SilenceI’m a 28 year old, living with two ver...
-
Long-Term Outcome of Metachronous Rectal Cancer Following Ileorectal Anastomosis for Familial Adenomatous PolyposisBACKGROUND : Total colectomy with ileore...
-
USPSTF Issues New Colorectal Cancer Screening GuidelinesThe US Preventive Services Task Force (U...
-
Colorectal Carcinomas, A Consideration on MutYH-Associated PolyposisColorectal cancer (CRC) is the second mo...
-
Causes, Diagnosis, Risk Factors, and Management of Familial Adenomatous PolyposisFamilial adenomatous polyposis (FAP) is ...