The Johns Hopkins Guide for Patients and Families: Familial Adenomatous Polyposis | oneFAPvoice

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guides & guidelines

The Johns Hopkins Guide for Patients and Families: Familial Adenomatous Polyposis

key information

source: Johns Hopkins

year: 2000


This booklet is written for individuals with familial adenomatous polyposis (FAP) and their families. The information provided is intended to add to, and is not a substitute for, discussions with doctors, genetic counselors, nurses, and other members of the health care team. We encourage you to read the entire booklet in the order in which it is written since each section is built on information in preceding sections. We want to emphasize the need for regularly scheduled, thorough medical examinations for persons who already have FAP.

More importantly, relatives at risk for this condition need to have regular examinations beginning at an early age. Names of support groups and additional publications concerning this condition are found at the end of the booklet.

The information included in this booklet can also be found on the Johns Hopkins Hereditary Colorectal Cancer website, Please visit that site to find the most current information on FAP.


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