7 Incredibly brave people living with rare diseases | oneFAPvoice

welcome to oneFAPvoice

- a positively charged Familial Adenomatous Polyposis community.
  • join today!

7 Incredibly brave people living with rare diseases


Living with a rare disease can be a lonely experience. There aren’t the same resources available, or enough awareness about the difficulties they face. These brave people might make up a small percentage of the population, but they deserve huge recognition.

Which is why ostomates in our community inspire us; they overcome almost impossible daily challenges to prove how much can be accomplished despite limitations. Here are seven incredible survivors living with illnesses you probably never heard of.

One of Chelsea’s biggest challenges is finding a doctor in Ohio who specializes in FAP. So instead of office visits, she meets with her physicians via phone and Skype. Every year, Chelsea has a colonoscopy to check if FAP has spread to other areas of her gastrointestinal tract. She also faces dietary challenges that vary from day-to-day.

expertly curated content related to this topic

To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences.
More information

The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.

Close