welcome to oneFAPvoice
- a positively charged Familial Adenomatous Polyposis community.- join today!
- login
StomaGirl
Hello and welcome to my blog! My name is Hannah and at some point this year I will be having my large intestine removed and a stoma fitted! To say this is a shock would be an understatement!
I have a rare condition, which is hereditary called FAP, HMPS, Gardeners syndrome (all of the above). I will go into more detail of what this is to hopefully raise awareness later.
My main aim is to show people that it’s ok, I stay upbeat by talking to people and not bottling up my feelings, after all I will need every bit of support I can get! I will be blogging my journey from life before a stoma and life during and after surgery.
expertly curated content related to this topic
-
Shrinking the SilenceI’m a 28 year old, living with two ver...
-
Psychological Distress and Quality of Life of Partners of Individuals with Familial Adenomatous PolyposisOBJECTIVE: Familial adenomatous polyposi...
-
diane’s storyI was devastated, I had made all my arra...
-
colleen mitchell’s storyMy name is Colleen Mitchell and I am so ...
-
Jon Olis’s StoryAfter being misdiagnosed with hemorrhoid...
-
When a Doctor Dismissed My Symptoms as Results of My ‘Poor Choices’“You’re making poor choices for a 22...
-
PTSD common in patients with familial adenomatous polyposisPosttraumatic stress disorder is common ...