welcome to oneFAPvoice
- a positively charged Familial Adenomatous Polyposis community.- join today!
- login
StomaGirl
Hello and welcome to my blog! My name is Hannah and at some point this year I will be having my large intestine removed and a stoma fitted! To say this is a shock would be an understatement!
I have a rare condition, which is hereditary called FAP, HMPS, Gardeners syndrome (all of the above). I will go into more detail of what this is to hopefully raise awareness later.
My main aim is to show people that it’s ok, I stay upbeat by talking to people and not bottling up my feelings, after all I will need every bit of support I can get! I will be blogging my journey from life before a stoma and life during and after surgery.
expertly curated content related to this topic
-
Jennifer Cross Johnson – F.A.P. Won’t Keep her Down!Jennifer Cross Johnson, who struggles wi...
-
Pilon Means Compassionhttps://www.youtube.com/watch?v=PqbjrBN3...
-
lorraine’s storyLorraine’s perspective on Familial Ade...
-
Rebecca’s Song “On Better Days”https://www.youtube.com/watch?v=Mr0WV-wE...
-
polyposis (polypeople)FAP is an inherited condition which main...
-
Desmoid Update – NIH clinical trial!https://www.youtube.com/watch?v=OE_GSI8A...
-
faces of blue: vanessa truogI am 36 years old. For the past six year...