welcome to oneFAPvoice
- a positively charged Familial Adenomatous Polyposis community.- join today!
- login
“Teenage cancer trust has shown me I was never alone” Phoebe, South Tyneside
I had been feeling ill for as long as I could remember, since the age of about 3. I went to the doctors all the time with bad pains in my abdomen but was just told it was IBS. Then, in 2012 when I was about 13, it got really bad. I was vomiting all the time and spending time off school. I couldn’t do PE because it gave me such overwhelming fatigue and exhaustion.
Finally, I was sent to hospital to have the issue investigated properly. I had a gastroscopy, which involved having a camera down my throat to have a look in my intestine. Before I was sedated for this, the nurse told me that I would probably wake up with a tube down my throat. This was because they thought it was either Crohn’s or Inflammatory Bowel Disease, and that is what the treatment would involve.
expertly curated content related to this topic
-
Attitudes Toward Genetic Testing in Childhood and Reproductive Decision-Making for Familial Adenomatous PolyposisChildhood DNA testing, prenatal diagnosi...
-
Dacarbazine-Doxorubicin Therapy Ameliorated an Extremely Aggressive Mesenteric Desmoid Tumor Associated with Familia...A 30-year-old man with familial adenomat...
-
Jennifer Cross Johnson – F.A.P. Won’t Keep her Down!Jennifer Cross Johnson, who struggles wi...
-
Desmoid Clinical Trial Update & Stuff!https://www.youtube.com/watch?v=uaMKoMHE...
-
Successful Radiofrequency Ablation of an Anterior Abdominal Wall Desmoid in Familial Adenomatous PolyposisBACKGROUND : Desmoid tumours are an impo...
-
Gender-Specific Aspects of Lynch Syndrome and Familial Adenomatous PolyposisBACKGROUND: The most frequent hereditar...